Analysis of Barthel index and care giver strain index in stroke patients in tertiary care hospital in South India

Hrishikesh S. Pai; B. Kannan; Y. Kingsly Jebasingh; A. Thomas Edwin Raj; Soumyakanti Das

doi:10.18203/2320-6012.ijrms20233713

Authors

Hrishikesh S. Pai Department of Neurology, Thoothukudi Government Medical College, Thoothukudi, Tamil Nadu, India
B. Kannan Department of Neurology, Thoothukudi Government Medical College, Thoothukudi, Tamil Nadu, India
Y. Kingsly Jebasingh Department of Neurology, Thoothukudi Government Medical College, Thoothukudi, Tamil Nadu, India
A. Thomas Edwin Raj Department of Neurology, Thoothukudi Government Medical College, Thoothukudi, Tamil Nadu, India
Soumyakanti Das Department of Neurology, Thoothukudi Government Medical College, Thoothukudi, Tamil Nadu, India

DOI:

https://doi.org/10.18203/2320-6012.ijrms20233713

Keywords:

Caregiver, Strain, Stroke, Barthel, Index

Abstract

Background: Stroke patients have high rate of mortality and morbidity and survivors suffer from physical, cognitive and emotional issues. Quality of life of stroke survivors depends on severity of disability. These disability or morbidities not only affect stroke survivors but also has impact on physical and psychological wellbeing of caregivers providing support for daily routine. Aim of this study is to analyse the dependency using Barthel Index in stroke patients and care giver strain (CSI) among caregivers.

Methods: A cross sectional descriptive study in a tertiary care hospital in South India. Study duration of 5 months. 150 Patients admitted for stroke meeting the inclusion criteria were included for the study. Caregiver was interviewed after Informed consent and briefing of purpose of study. Berthel index and modified care giver strain index questionnaire was filled by interviewer with caregiver. Findings were described in simple descriptive manner. Statistical package for the social sciences (SPSS) version 24 was used for statistical analysis.

Results: Of 150 patients male 64% female 36%. Care giver strain score of <7 (40%), 8-14 (42%), >14 (18%). Sleep deprivation 68%, physical strain 85%, family adjustment problems 32%, work adjustment problems 67%, financial strain 76%, emotional adjustment problems 33%, personal plans problems 44%, upsetting behavior problems 44%. Only 17% termed it as inconvenient, 24% completely overwhelmed, 29% confining. Barthel index of >80 able to live independently (13%), 61-80 minimally dependent (32%), 41-60 partially dependent (26%), 21-40 very dependent (13%), <20 total dependency (16%).

Conclusions: In stroke care caregiver strain is high when patient is dependent for routine activities. This includes physical as well as psychological strain. There is need to develop strategic home based or community based programs to reduce caregiver stress and improve their quality of life.

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